Latest news from International League Against Epilepsy on Newswise en-us Copyright 2024 Newswise 115 31 / /images/newswise-logo-rss.gif /articles/transition-to-adult-care-in-epilepsy-bridging-the-gap/?sc=rsin /articles/transition-to-adult-care-in-epilepsy-bridging-the-gap/?sc=rsin Wed, 21 Aug 2024 14:05:39 EST Once they turn 18, most adolescents with epilepsy must transfer from pediatric to adult care. Factors on both the pediatric and adult sides of the health care system can make this process fragmented and stressful. How can pediatric and adult neurologists ensure that teenagers with epilepsy do not get lost in the system? International League Against Epilepsy /articles/consensus-recommendations-for-epilepsy-with-eyelid-myoclonia-jeavons-syndrome-dr-kelsey-smith/?sc=rsin /articles/consensus-recommendations-for-epilepsy-with-eyelid-myoclonia-jeavons-syndrome-dr-kelsey-smith/?sc=rsin Wed, 21 Aug 2024 13:05:39 EST A recent publication outlines consensus recommendations on several aspects of managing epilepsy with eyelid myoclonia, also known as Jeavons syndrome. What are the most effective first-line medications? Are there non-pharmacologic treatment options? Can people with this type of epilepsy drive safely? Dr. Alina Ivaniuk talks to the paper's first author, Dr. Kelsey Smith. International League Against Epilepsy /articles/planes-de-acci-n-para-las-crisis-epil-pticas-m-s-que-herramientas-de-tratamiento-para-la-epilepsia/?sc=rsin /articles/planes-de-acci-n-para-las-crisis-epil-pticas-m-s-que-herramientas-de-tratamiento-para-la-epilepsia/?sc=rsin Tue, 20 Aug 2024 12:05:25 EST Historicamente, los planes de accion contra las convulsiones se han centrado en ciertos grupos de personas con epilepsia de alto riesgo. Pero algunos medicos dicen que los planes de accion para las convulsiones son importantes herramientas educativas y de control de las convulsiones que deben ofrecerse a todos. International League Against Epilepsy /articles/outcomes-in-developmental-and-epileptic-encephalopathies-managing-more-than-seizures-dr-scott-demarest/?sc=rsin /articles/outcomes-in-developmental-and-epileptic-encephalopathies-managing-more-than-seizures-dr-scott-demarest/?sc=rsin Mon, 12 Aug 2024 13:05:21 EST Besides seizures, people with developmental and epileptic encephalopathies can experience a wide variety of symptoms, including sleep problems, vision problems, and behavioral issues. Dr. Scott Demarest discusses how neurologists may be able to address some of these issues, potentially improving outcomes and quality of life. International League Against Epilepsy /articles/duquer-les-non-sp-cialistes-au-mexique-un-nouveau-cours-universitaire-offre-une-exp-rience-hybride/?sc=rsin /articles/duquer-les-non-sp-cialistes-au-mexique-un-nouveau-cours-universitaire-offre-une-exp-rience-hybride/?sc=rsin Fri, 09 Aug 2024 09:05:48 EST En raison du manque relatif de neurologues, la plupart des prestataires de soins de sante primaires en Amerique latine sont charges de fournir des soins aux personnes atteintes d'epilepsie. Neanmoins, comme la plupart des professionnels de la sante primaires dans le monde, ces professionnels n'ont pas une formation suffisante pour gerer l'epilepsie. Un nouveau cursus universitaire vise a resoudre ce probleme en formant les prestataires de soins de sante par le biais d'un programme structure. International League Against Epilepsy /articles/investigaci-n-y-financiaci-n-de-la-epilepsia-en-pa-ses-de-bajos-recursos-cuestiones-ticas-y-pasos-hacia-la-equidad/?sc=rsin /articles/investigaci-n-y-financiaci-n-de-la-epilepsia-en-pa-ses-de-bajos-recursos-cuestiones-ticas-y-pasos-hacia-la-equidad/?sc=rsin Thu, 01 Aug 2024 13:05:34 EST Menos del 10% de la financiacion de la investigacion sobre la epilepsia se destina a la salud en los paises de menores recursos, a pesar de que el 80% de las personas con epilepsia viven en estos paises. La promocion de la investigacion mundial sobre la epilepsia y la mejora de las vias de financiacion tienen el potencial de aumentar la capacidad de investigacion de los paises de ingresos bajos y medianos y promover la equidad en la investigacion de la epilepsia en todo el mundo. International League Against Epilepsy /articles/investigaci-n-sobre-la-epilepsia-en-reas-de-bajos-recursos-las-complejidades-de-los-datos-y-del-consentimiento/?sc=rsin /articles/investigaci-n-sobre-la-epilepsia-en-reas-de-bajos-recursos-las-complejidades-de-los-datos-y-del-consentimiento/?sc=rsin Thu, 01 Aug 2024 11:05:09 EST Aunque el 80% de las personas con epilepsia viven en paises de ingresos bajos y medianos, la mayoria de las investigaciones sobre la epilepsia se originan en regiones de ingresos altos. International League Against Epilepsy /articles/seizure-action-plans-more-than-management-tools-for-epilepsy/?sc=rsin /articles/seizure-action-plans-more-than-management-tools-for-epilepsy/?sc=rsin Wed, 31 Jul 2024 11:05:03 EST Historically, seizure action plans have focused on certain high-risk groups of people with epilepsy. But some clinicians say that seizure action plans are important educational and seizure management tools that should be offered to everyone. International League Against Epilepsy /articles/al-volante-c-mo-conducir-con-epilepsia/?sc=rsin /articles/al-volante-c-mo-conducir-con-epilepsia/?sc=rsin Mon, 15 Jul 2024 10:05:43 EST Para las personas con epilepsia, la capacidad de conducir se encuentra entre sus principales preocupaciones. Las regulaciones varian de un pais a otro; muchos paises tienen algunas restricciones para que las personas con epilepsia puedan conducir, pero algunos otros no tienen politicas establecidas al respecto. International League Against Epilepsy /articles/superar-las-barreras-quir-rgicas-en-reas-de-bajos-recursos/?sc=rsin /articles/superar-las-barreras-quir-rgicas-en-reas-de-bajos-recursos/?sc=rsin Wed, 19 Jun 2024 14:05:55 EST Hasta la mitad de las personas con epilepsia resistente a los medicamentos (ERD) pueden beneficiarse de la cirugia. Sin embargo, en muchas regiones de bajos recursos, el establecimiento de un programa quirurgico requiere enfrentar multiples desafios. International League Against Epilepsy /articles/prestation-de-soins-lors-de-crises-fonctionnelles-isol-seul-impuissant/?sc=rsin /articles/prestation-de-soins-lors-de-crises-fonctionnelles-isol-seul-impuissant/?sc=rsin Tue, 18 Jun 2024 11:05:33 EST Comme les personnes atteintes d'epilepsie, les personnes souffrant de crises fonctionnelles vivent avec la stigmatisation, le stress et les fardeaux emotionnels et financiers - tout comme leurs partenaires de soins. International League Against Epilepsy /articles/en-una-sesi-n-especial-se-revisan-los-objetivos-y-el-progreso-para-avanzar-en-la-investigaci-n-y-la-atenci-n-de-la-epilepsia/?sc=rsin /articles/en-una-sesi-n-especial-se-revisan-los-objetivos-y-el-progreso-para-avanzar-en-la-investigaci-n-y-la-atenci-n-de-la-epilepsia/?sc=rsin Fri, 14 Jun 2024 13:05:35 EST Una sesion especial en la reunion de la Sociedad Americana de Epilepsia en diciembre de 2023, atrajo a mas de 70 asistentes para revisar el progreso del Plan de Accion Mundial Intersectorial sobre Epilepsia y otros Trastornos Neurologicos (IGAP) y discutir estrategias para avanzar. International League Against Epilepsy /articles/the-power-of-big-data-in-epilepsy-research-dr-philippe-ryvlin/?sc=rsin /articles/the-power-of-big-data-in-epilepsy-research-dr-philippe-ryvlin/?sc=rsin Fri, 14 Jun 2024 13:05:23 EST The Human Intracerebral EEG Platform is a cloud-based environment that encourages centers to share data and conduct research with state-of-the-art methodologies. Dr. Maryam Nouri interviews Dr. Philippe Ryvlin about the potential of the platform to advance the understanding of human brain function. International League Against Epilepsy /articles/letter-to-editor-and-response-is-neurocysticercosis-a-main-cause-of-epilepsy/?sc=rsin /articles/letter-to-editor-and-response-is-neurocysticercosis-a-main-cause-of-epilepsy/?sc=rsin Fri, 07 Jun 2024 12:05:18 EST ILAE produced a podcast episode in 2023 in which Dr. Hector Garcia talked about neurocysticercosis as a main cause of epilepsy. Two researchers from Latin America wrote in and questioned how frequently this parasitic infection actually leads to epilepsy. Dr. Garcia responded. International League Against Epilepsy /articles/reproductive-health-counseling-in-young-women-with-epilepsy-room-for-improvement/?sc=rsin /articles/reproductive-health-counseling-in-young-women-with-epilepsy-room-for-improvement/?sc=rsin Fri, 07 Jun 2024 09:05:07 EST Pediatric neurologists are not counseling young adults with epilepsy about reproductive issues as frequently as needed, according to a recent 10-year study. Some conversations, such as those about pregnancy and the potential effects of antiseizure medications, are almost nonexistent. International League Against Epilepsy /articles/changing-epilepsy-care-through-entrepreneurship-dr-mark-cook/?sc=rsin /articles/changing-epilepsy-care-through-entrepreneurship-dr-mark-cook/?sc=rsin Mon, 20 May 2024 11:05:59 EST Dr. Cook realized, when his father was diagnosed with epilepsy, that a system to identify and predict seizures could improve care and change people's lives. In this episode, Dr. Cook talks about entrepreneurship in epilepsy and advancing the field through innovation. International League Against Epilepsy /articles/am-liorer-le-pipeline-d-valuation-de-la-chirurgie-de-l-pilepsie-formation-et-communication/?sc=rsin /articles/am-liorer-le-pipeline-d-valuation-de-la-chirurgie-de-l-pilepsie-formation-et-communication/?sc=rsin Mon, 13 May 2024 11:05:37 EST Les recommandations de la Commission des therapies chirurgicales de l'ILAE suggerent de referer chaque patient de moins de 70 ans souffrant d'epilepsie resistante aux medicaments pour une evaluation plus approfondie des qu'ils ont echoue a deux medicaments anticonvulsivants. Et bien que la chirurgie puisse etre une option pour jusqu'a 40 % d'entre eux, moins de 1 % sont referes aux centres d'epilepsie chaque annee. International League Against Epilepsy /articles/health-related-quality-of-life-after-pediatric-epilepsy-surgery-dr-mary-lou-smith/?sc=rsin /articles/health-related-quality-of-life-after-pediatric-epilepsy-surgery-dr-mary-lou-smith/?sc=rsin Tue, 07 May 2024 14:05:31 EST What factors determine quality of life after pediatric epilepsy surgery? How can clinicians set families up for success? Dr. Kette Valente talks with Dr. Mary Lou Smith, whose work has implications for treatment decisions and setting expectations about the impact of surgery. International League Against Epilepsy /articles/le-diagnostic-l-re-num-rique-en-faveur-des-vid-os-personnelles/?sc=rsin /articles/le-diagnostic-l-re-num-rique-en-faveur-des-vid-os-personnelles/?sc=rsin Tue, 07 May 2024 14:05:09 EST Les videos personnelles de personnes presentant des activites s'apparentant a des crises peuvent aider les neurologues a diagnostiquer et a traiter l'epilepsie. International League Against Epilepsy /articles/combler-le-foss-du-traitement-de-l-pilepsie-en-bolivie-trois-d-cennies-d-initiatives/?sc=rsin /articles/combler-le-foss-du-traitement-de-l-pilepsie-en-bolivie-trois-d-cennies-d-initiatives/?sc=rsin Mon, 29 Apr 2024 12:05:35 EST Le deficit de traitement de l'epilepsie en Amerique latine est d'environ 60 %, mais le deficit de traitement dans les zones rurales de la region peut atteindre 90 %. En Bolivie, les facteurs contribuant a l'ecart de traitement sont similaires aux facteurs dans d'autres regions eloignees a faibles ressources. International League Against Epilepsy